Manage Your Diseases & Conditions

Rare Disease Resources

The resources and tools below are designed to help you learn more about rare diseases.

The Autoinflammatory Alliance (formerly known as The NOMID Alliance)

Resource dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with CAPS (cryopyrin-associated periodic syndromes) and other autoinflammatory syndromes.

Mayo Clinic

An A-to-Z resource for general information on a variety of diseases and conditions.

National Organization for Rare Disorders

Learn more about rare "orphan" diseases and assisting the organizations that serve them.

Pulmonary Hypertension Association

Information on the prevention and cure of pulmonary hypertension as well as support, education, advocacy, and awareness for the pulmonary hypertension community.